Wednesday, 2 May 2012

Bartter's syndrome

"Bartter's syndrome is caused by a defect in the kidney's ability to reabsorb sodium. Persons with the condition lose too much sodium through the urine. This causes a rise in the level of the hormone aldosterone and makes the kidneys remove too much potassium from the body. This is known as potassium wasting."

Before pregnancy I took 3 tablets a day to manage my condition.  I had to stop taking one of these because it wasn't suitable to take whilst pregnant.  By the end of the pregnancy I was taking almost 30 tablets a day just to be normal.

The main symptoms I had from the condition was tiredness.  Because of this I couldn't tell if I needed to increase my tablets without blood tests because pregnancy also makes you pretty tired (as does having a baby!).  As a result I had to have blood taken every other week to make sure my potassium wasn't dropping.  Between this and all of the hospital visits, because there is little known about the condition and pregnancy,  I was pretty sick of doctors! 

For the most part it was easy enough managed because I am pretty used to taking tablets and having blood drawn for tests.  However, it was quite stressful not knowing what was going to happen- for me and my baby.  No one could say what would happen as the pregnancy progressed, what would happen to me after and they were guessing a lot about my baby.

It seems that the classic form of the syndrome that I have is unlikely to have been inherited by my daughter as my husband does not have the condition and is unlikely to be a carrier as it is such a rare condition.  She also seems to have been absorbing enough potassium from me during pregnancy so there has been no problem that way.

As for after birth my levels shot up as soon as she was born.  And just like the crazy hair and nail growth I've been experiencing after birth my levels do not seem to be dropping just yet even though I've limited my tablets.  I will need to keep an eye on it until I have recovered from the birth completely.

I will also be keeping a close eye on my daughter's health as I have been told so often that I am the expert in my condition.  Any signs of fatigue, muscle weakness, nerve problems or "growing pains" and I will be having her levels checked!!



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